A Disappointing Day

Here we have a quick update on yesterdays activities.

I woke up early, having actually slept very little to discover that my 5% had dropped to 4%, not a good start to the day! 4% feels like such a small number to be maintaining so many important functions in my body!

Thankfully more snow had not fallen so me and mum were able to make the journey to Plymouth. We got there in ample time for mum to make her appointment in the Nuclear Medicine Department. As with last time mum had various injections and then her blood taken at specific intervals to see how well her kidneys performed under stress.

Next we had the all important appointment with the Surgeon. To my surprise he did not seem at all aware of the fact that he was supposed to be making a decision that day or that he was considering my transplant operation in December at all!! The Surgeon along with a nurse that I had not previously met literally shattered my hopes in one minute flat in the public waiting room!!

What I have found in Derriford is that you are not treated like a person, you are just a number which is on a (very slow) conveyor belt not ever seeing the same person twice, whereas in Treliske they seem to be much more caring and thoughtful, you have the same contact at every appointment and they seem to be fighting a constant loosing battle trying to fight your corner in Derriford from a long distance.

Anyway, that's enough negativity as it doesn't help anyone! I am now waiting for my appointment to have my catheter fitting so that I can start dialysis, my consultant is still pushing for my transplant in January but I'm not going to allow myself to hope for it this time as the disappointment is devastating.

So there you have it, an unusually downbeat blog from me, sorry about that, but sometimes even the strongest of people struggle to smile through hard times ;-)

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Me and my journey through kidney disease . . . .

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