An Uneventful Week!!

This week has been very uneventful!! Nothing of much interest has happened at all.

I have been very tired and have felt extremely nauseous again which has put me off my food, lost 4kg so not all bad! The doctor wasn't so pleased!!

My excitement of getting 7% kidney function for my last outpatients appointment was short lived and promptly went back to 6% at its first opportunity!! My creatinine is also on the rise again. However still not on dialysis and no plans to go onto it at present! Yay!

We are still waiting for the results of the tissue typing tests so, although mum is being rushed through all of the donor tests, we still do not know if she is a match. Please keep your fingers crossed!

Sleeping has been my worst problem, or lack of it anyway! The minute it has been time to turn the lights off my eyes have become the size of saucers and I have tossed and turned all night, maybe getting just a few hours of sleep. However, I think this has now been resolved. I have had to start taking my anti-sickness tablets again and this has made me very drowsy. BINGO!! Sleeping again!!

I have also been doing lots of research into my disease and the treatments. I was shocked to discover that Derriford only performs about 50 kidney transplants per annum, I thought it would be a much larger number. I quizzed my consultant on this and he said that is because only 10% of patients are eligible for a transplant. It turns out the average age for kidney failure in our region is 75!! Trust me to have an OAP disorder!! It must have been about 80 before they had me "on the books!!"

Well that's it for this week, a quiet week is a good week as far as I am concerned ;-)

Comments

Time Flys When You're Having Fun!!

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It is with great sadness that I am writing this blog. My Dad, Terry Carroll, passed away on the 31st August following a cardiac arrest on Helston Bowling Green on the 24th August. We take great comfort in the fact that he was doing what he loved. Dad was taken to hospital by air ambulance and had his heart restarted, however, his brain was without oxygen for too long and we were told by the doctors that he was very unlikely to survive. After three days with no response from dad, the doctor introduced us to the donor nurse. As you know, all of my family are advocates for organ donation, but we never thought for a minute that we would be on the other side of that conversation. Dad had been on the donor register for many years, long before I was unwell, and had made his wishes very clear, therefore we said yes. The fact that dad wished to donate his organs meant that there was a delay before the doctors took dad off his ventilator, 12 hours or so. We ...

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SIGNIFICANT MILESTONES! Another year has passed but this year with several significant milestones! In August I reached the ripe old age of 40! I have no idea how I got so old so very quick! Where has the time gone! In December I celebrated my 10th year working with/for Frugi they started out as one of my clients when I was self employed and now I'm their full time Finance Director. A job I absolutely love! (Most days!!) Earlier this month Trev and I celebrated 15 years together! We have such a laugh all of the time, no day is ever dull! Finally today is the fifth anniversary of my kidney transplant, an important day in my calendar. Everyday I live without the need for dialysis is such a gift. I am fit, healthy and live everyday to the full. I am so very privileged and wouldn't be in this position without my mum, my donor. Thank you mum. Mum and I at the...

Me and my journey through kidney disease . . . .

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