Me and my journey through kidney disease . . . .

In the post today I received my log in for the "Renal Patients View".  This is a  website where you can log in and see your test results and other information. This got me thinking whether this was good or bad.  I know that I will probably look at it way too often and maybe actually get obsessed, for instance, I had blood taken today so I am sure that several times tomorrow and the day after I will be logging in until I can see my results. I have also already gone through my results in detail and this could be rather scary for the fainthearted!  For instance: Urea (Toxin Clearance) - Score is very high and suggests serious illness (I suppose I knew that!) Creatinine (Toxin Clearance) - Severe kidney failure (most dialysis patients have a score over 300 and mine is over 700!!) Potassium - mine is fine at the moment and that is the one I need to keep under control with my diet. There are then several tests regarding bone disease, my results are in the ok range bu...

I forgot about this when I wrote the blog about the High Dependency Unit. The doctors at that point were trying to establish if my high blood pressure came first and caused the kidney failure or if the kidney failure was causing the high blood pressure. Trev decided to call the DDRC (Diving Diseases Research Centre) as I had been diving in July in Tunisia, he wanted to see what impact it would have had if my blood pressure had been at the extremely high level of 250/150.  The response chilled me to my bones, they said that without a doubt I would have died at the shallow depth of ten meters.  The thing is, in August I had booked for a days diving for my birthday.  I was feeling under the weather then but I would not have let that stop me going.  This dive would most likely have been a minimum of twenty meters in depth. The day before my birthday the dive was cancelled, I was mad at the time as I was really looking forward to going.  Now I think someone must ...

On Thursday I had to go to my first outpatients appointment and I went on my own.  I did not have to go on my own, but I figure that I may as well get used to it as this is now how my life is going to be. As well as going through my blood results, checking my waterworks and blood pressure I had to try and do the dreaded injection myself again!  Now, this may sound bonkers but I had spent some time just holding the needle and getting used to the feel of it in my hand!  The injection doesn't hurt so there is no reason whatsoever why I can't do it myself.  Well I would just like to say that I am no longer incompetent!!  Whoopee!! Once all the boring stuff had been done my doctor came in to see me.  I could tell by his face that something was bothering him.  He basically said that he is battling with the decision of whether to put me on dialysis or not.  He said that he didn't have any patients with function as low as mine who were not on dialysis a...

On Monday 13th September I went back to work.  I am absolutely determined that I am going to lead a normal life and not "become a patient" (this was a phrase that the doctor used which I particularly like!!)  It would be all too simple to stay at home and feel sorry for myself but where would that get me? In the beginning part of the week I found that my brain was not working adequately!  I had difficulty focusing on the job in hand so I allocated myself easy jobs which did not require much brainpower!  The doctor had joked that I would not be as bright as I had much more oxygen going to my brain when I had a high blood pressure!! Each evening when I came home from work I would have to go straight to bed and I would spend the entire evening snoozing and then would sleep for a massive ten hours or so!  I have always been an eight hour a night person but this is ridiculous!! However, I did it!!  I worked the entire week except for the times I had to go to ...

On the 11th September my good friend Tara got married to David.  I was invited to the whole shebang and I was absolutely determined that I would go and enjoy the entire day.  Thankfully it was a late start so I spent the day sleeping and resting as much as possible. One bonus of being in hospital before the wedding was I lost the few pounds I needed to make my outfit look perfect!!  As they say, every cloud has a silver lining!! The wedding was lovely, Tara looked stunning and David very suave and sophisticated!!  The setting was beautiful also and I particularly loved the peacocks wondering around in the grounds. By the time we got to the reception I was tired and cold, I think the coldness is a side effect of the tablets I am taking as I am constantly on the chilly side! The meal was really nice but I failed to avoid the jacket potatoes which are on my "banned" food list!  Ooops!!  I did have a glass of the bubbly stuff which is on my "...

I have found my reaction very odd since I have discovered that I have kidney failure.  I have not shed a tear nor worried about what I am going to go through in the future.  I have taken it in my stride and comforted family and friends who have found the news difficult to handle. However, every time someone has been generous enough to offer me one of their kidneys I have had trouble stopping tears coming to my eyes.  Basically they are offering me the gift of life, an offer so large it is hard to comprehend.  So thank you, you know who you are and I will never forget the massive sacrifice you were willing to make for me.  Sometime in the future, hopefully one of you will have been found to be compatible and I will have one of your kidneys and leading a normal life :-)

Trev took time off work so that I would not be alone on my return home from hospital.  I had the best nights sleep back in my own bed!  I felt tired but no different to normal, it felt a little sureal that I had just discovered that I was going to be going through the most testing time of my life. On Thursday 9th September I had several appointments at the hospital.  The first was at the emergency eye clinic.  They told me that I had damage in three spots due to the high blood pressure but that would not be permanent damage.  This was a huge relief.  The thought of damaged eyesight scared me more than my kidney troubles. Next I had an appointment with the anemia nurse.  I didn't know I had anemia until then but she spent time explaining to me that the kidneys produced the hormone which tells your bone marrow to produce red blood cells.  I had less than half the red blood cells that I should have.  The nurse firstly injected a huge amount of...